What ‘kind’ of community is demanded by a problem like dementia?
As aspects of care continue to transition from institutional to community and home settings, this book considers the implications for people living with dementia and their carers.
Drawing on extensive fieldwork and case studies from Canada, this book analyses the intersections of formal dementia strategies and the experiences of families and others on the frontlines of care.
Considering the strains placed on care systems by the COVID-19 pandemic, this book looks afresh at what makes home-based care possible or impossible and how these considerations can help establish a deeper understanding necessary for good policy and practice.
"This is an intriguing and thought-provoking ethnographic style book that brings questions to our understanding of family care practices. The everyday experience of family members is brought to the fore in a novel way." Anthea Innes, University of Salford
“The burning issue in this book is how to support care at home. Adopting a practice-based research approach, it offers important insights sorely needed across fields and to everyone involved in care for people living with dementia.” Ingunn Moser, VID Specialized University/Diakonhjemmet University
Christine Ceci is Associate Professor in the Faculty of Nursing at the University of Alberta, Canada.
Mary Ellen Purkis is Professor Emerita in the School of Nursing at the University of Victoria, Canada.
1. Studying family care practices
2. From strategy to service: practices of identification and the work of organizing dementia services
3. What matters for care at home for people living with dementia? Using film to surface the situated priorities of differently positioned ‘stakeholders’
4. Negotiating everyday life with dementia: four families
5. Relations between formal and family care: divergent practices in care at home for people living with dementia
6. Patterning dementia
7. Borders and helpfulness
8. How to sustain a good life with dementia?