Policy Press

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COVID-19 and Co-production in Health and Social Care Research, Policy and Practice

Volume 2: Co-production Methods and Working Together at a Distance

Edited by Oli Williams, Doreen Tembo, Josephine Ocloo, Meerat Kaur, Gary Hickey, Michelle Farr and Peter Beresford


Apr 23, 2021

Page count

160 pages





Policy Press

EPDF and EPUB available Open Access under CC-BY-NC-ND licence. Groups most severely affected by COVID-19 have tended to be those marginalised before the pandemic and are now being largely ignored in developing responses to it.

This two-volume set of Rapid Responses explores the urgent need to put co-production and participatory approaches at the heart of responses to the pandemic and demonstrates how policymakers, health and social care practitioners, patients, service users, carers and public contributors can make this happen.

The second volume focuses on methods and means of co-producing during a pandemic. It explores a variety of case studies from across the global North and South and addresses the practical considerations of co-producing knowledge both now - at a distance - and in the future when the pandemic is over.

Peter Beresford, OBE is Visiting Professor at the University of East Anglia, Co-Chair of Shaping our Lives and Emeritus Professor at Brunel University London and Essex University.

Michelle Farr is a Research Fellow at the National Institute for Health Research (NIHR) Applied Research Collaboration West at the University of Bristol.

Gary Hickey is Senior Research Fellow in the Research Design Service South East at the University of Brighton and Senior Public Involvement Manager at the Wessex Institute at the University of Southampton.

Meerat Kaur is part of the Centre for Engagement and Dissemination at the National Institute for Health Research (NIHR), and an advisor on collaborative approaches for diverse statutory, and community and voluntary organisations.

Josephine Ocloo is a Senior Researcher and Diversity and Inclusion lead for the National Institute for Health Research (NIHR) Applied Research Collaboration, South London, based at the Centre for Implementation Science (CIS) at King’s College London.

Doreen Tembo is a Senior Research Manager at the UK National Institute for Health Research (NIHR) Evaluation Trials and Studies Coordinating Centre at the Wessex Institute at the University of Southampton.

Oli Williams is a Postdoctoral Research Fellow based at King’s College London and funded by the Health Foundation’s grant to the University of Cambridge for The Healthcare Improvement Studies (THIS) Institute.

Introduction: redistributing power to work together during and after this pandemic ~ Peter Beresford, Michelle Farr, Gary Hickey, Meerat Kaur, Josephine Ocloo, Doreen Tembo and Oli Williams

International perspectives on the impact of COVID-19 on community engagement within mental health research ~ Rosemary Musesengwa

Digital exclusion and strategies to overcome this ~ Michelle Farr and members of the Bridging Gaps group

COVID co-production does not *HAVE* to be digital! Why "which platform should we use?" should not be your first question ~ Joe Langley, Ian Gwilt, Aaron Davis, Niki Wallace

#WirVersusVirus: communities co-designing new solutions to meet Covid-19 challenges through hackathons in Germany ~ Elke Loeffler

The Egyptian response to the pandemic and the need for cooperative research ~ Laila Mahmoud Kamel and Noha Asem

Zoom fatigue’ helps neurotypical people understand what it is normally like for us and here’s why we want digital meetings to stay ~ Emily Niner, Kerrie Portman, Ambitious about Autism, et al

South Asian Perspectives and digital innovations ~ Mary Chambers et al

Co-creating our strategy during lockdown: the story of the UCL Centre for Co-production in Health Research ~ Niccola Hutchinson-Pascal et al

Remote research practices: learning from a “housebound” community of Experts by Experience ~ Catherine Hale and Alison Allam

Sourcing and sharing resources for digital codesign and remote PPI ~ Sarah Knowles

Co-producing knowledge on social, racial and spatial inequalities and socioeconomic vulnerabilities in Brazil during the COVID-19 pandemic ~ Lisa Dikomitis, Leny Trad and Clarice Mota

Rural COVID Life: attempting to work with those living in remote communities in Scotland ~ Rebecca Dawson et al

The ongoing development, research and work around COVID-19 and psychological well-being in Punjabi communities ~ Shuranjeet Singh

Perspectives from Uganda ~ Peter O. Ekiikina

Helping field teams in Spain to better identify, engage and support people affected by ongoing and recurrent violence ~ Bettina Boehm and Médecins Sans Frontières/Doctors Without Borders

Saving lives through effective community engagement: inclusive dialogue that builds partnerships in South Los Angeles, USA ~ Peter Mendel (RAND Corp) and Los Angeles Metropolitan Churches

From Utopia Now to Dystopia Now: co-producing knowledge about young people’s hopes and fears for the future ~ Hannah Cowan, Charlotte Kuhlbrandt et al

The impact of COVID-19 on working with young people in Cape Town ~ Tasha Koch

Working with a Young People’s Advisory Group during lockdown ~ Mike Bell and NIHR ARC West’s Young People’s Advisory Group

Conclusion and critical reflections: the challenge and necessity of co-producing research, policy and practice both during and after this pandemic ~ Peter Beresford, Michelle Farr, Gary Hickey, Meerat Kaur, Josephine Ocloo, Doreen Tembo and Oli Williams